Medical Resources
Individuals with Down syndrome need the usual health care screenings and evaluations recommended for the general population. However, because children and adults with Down syndrome are at increased risk of having and/or developing a variety of medical conditions, there are additional tests or evaluations that are recommended.
Emory Down Syndrome Clinic
DSAA provides financial support and partners with the Down Syndrome Clinic in the Department of Human Genetics at Emory University. The Emory Down Syndrome Clinic provides clinical services, genetic counseling, educational guidance, and resources specific to the child’s needs.
The Emory Down Syndrome Clinic schedules initial visits for children from birth to 14 years of age who have a confirmed diagnosis of Down syndrome. Each family's visit is a private appointment. The clinic team includes physicians and staff who have extensive experience in genetics, development, and education with an emphasis on the needs of individuals with Down syndrome and their families. These appointments are not designed to replace regular pediatric care but to provide an opportunity for parents to become familiar with Down syndrome and to discuss their questions and concerns in a family-centered environment.
Adult Disability Medical Healthcare
Adult Disability Medical Healthcare (ADMH) offers a multidisciplinary team of physicians, psychologists, nutritionists, social workers and others who evaluate and provide program planning guidance for adolescents and adults with Down syndrome.
Additional Medical Resources
The most recent guidelines, "Health Supervision for Children with Down Syndrome", were published by the American Academy of Pediatrics in Pediatrics (Vol. 128, No. 2, August 1, 2011. Pp. 393-406).
"Health Supervision for Children with Down Syndrome" – Entire Article
Summaries by the National Down Syndrome Society of the "Health Supervision for Children with Down Syndrome"
Healthcare Guidelines – Neonatal (Birth – 1 month)
Health Care Guidelines - Infant (1- 12 Months)
Health Care Guidelines - Ages 1-5
Health Care Guidelines - Ages 5-13
Health Care Guidelines - Ages 13-21
Health Care Guidelines - Adulthood
Growth Charts as published by the Centers for Disease Control and Prevention
Katie Beckett Deeming Waiver Walk-through
Down Syndrome Health Information
Health Care Guidelines for Individuals with Down Syndrome, American Academy of Pediatrics
National Academy for Child Development
U.S. National Library of Medicine
Dental Care Guidance for Caregivers of Patients with Down Syndrome